Aim:
To improve advance care planning (ACP) evidence-based resources for people with cancer, support people, and oncology health professionals across Australia.
Methods:
Rapid literature review was conducted in January 2020 to determine the barriers and facilitators of ACP in cancer services. In addition, two national, online cross-sectional surveys were conducted: (1) of adults with cancer and support people; (2) of oncology health professionals. Survey responses were collected, and descriptive analyses completed. National ACP and cancer networks were established including representation from oncology peak-bodies and organisations. Evidence-based ACP content, resources, and education were developed and disseminated nationally.
Results:
Literature review and survey results highlighted the benefits of ACP for people with cancer, their families and oncology services. However, very few people with cancer had documented their values and preferences for medical treatment. The national survey of consumers and support people highlighted that people with cancer were more likely to discuss their preferences with family or friends than doctors. The national survey of health professionals found similar low understanding and uptake of ACP. Survey results demonstrated important gaps in education and information provision for people with cancer, support people, and oncology health professionals.
Over 27,000 resources aimed at consumers were printed or viewed online and over 16,000 health professionals were supported through receiving relevant ACP information or education across the one-year period. ACPA’s National ACP Week Campaign was delivered and reached 3.25 million Australian’s nation-wide, improving awareness of ACP in the community.
Conclusion:
Despite increasing awareness of ACP, understanding amongst people with cancer, support people and oncology health professionals remains low. This may affect people with cancer receiving preference aligned treatment and end-of-life care. More focus on collaboration and disseminating ACP content, resources, and education through existing networks and channels is required to increase understanding and implementation in Australian oncology services.